There is broad agreement that individuals’ priorities and health goals should guide their care, especially among adults with complex needs who face trade-offs in determining the right course of treatment. The National Committee for Quality Assurance (NCQA) joined forces with self-advocates, care partners, research experts and care organizations, and Institute for Exceptional Care, with support from the WITH Foundation, to adapt the person-centered outcomes approach for adults with intellectual and/or developmental disabilities.
Implementation of the person-centered outcomes approach requires multi-stage practice change, including training team members on the approach, adapting workflows and using quality improvement methods to achieve practice change and develop documentation structures. This toolkit is designed to support the implementation of the person-centered outcomes approach in organizations that care for adults with intellectual and/or developmental disabilities (IDD). Each module outlines the steps needed to implement the person-centered outcomes approach successfully.
- Module 1 provides a foundational overview of intellectual and developmental disabilities (I/DD).
- Module 2 introduces the person-centered outcomes approach and measures.
- Module 3 summarizes the goal-setting process and how clinicians can identify what matters most to an individual through a values conversation.
- Module 4 describes the goal attainment scaling method and how clinicians can use goal attainment scaling to track progress on a goal identified as most important to an individual.
- Each module has a resource section that contains forms and resources to support implementation of the person-centered outcomes approach.
FUNDING
This document was produced independently by NCQA with financial support from the Working for Inclusive and Transformative Healthcare (WITH) Foundation.
The mission of the WITH Foundation is to promote the establishment of comprehensive healthcare for adults with developmental disabilities that is designed to address their unique and fundamental needs. For more information, visit www.withfoundation.org.
This toolkit is an adapted version of the Person-Centered Outcome Approach Toolkit, originally published in 2024. The original publication was created with funding from The John A. Hartford Foundation and The SCAN Foundation. The WITH Foundation, John A. Hartford Foundation and The SCAN Foundation did not provide input into this document.
To view the previous toolkit, visit The Person-Centered Outcomes Approach Toolkit.
